Meeting of the Working Group on the Legal Regulation of Genetic Technologies, Including Genome Editing, and Bioethics Preventing Hereditary Diseases and Promoting Reproductive and Genetic Well-Being

February, 13

12:00–13:30

Genetic Technologies: Part of the Medicine of the Future

World Trade Center Moscow, entrance No. 4, 1st floor, conference hall 1. ROSATOM

As medical practice adopts more genetic technologies, it becomes easier and more affordable for expecting parents to prevent hereditary disease in their future child. Preconception screening can identify major recessive genetic disorders in expectant parents, determine the risk of transmitting the mutations to the child, and suggest interventions, technologies, and approaches capable of increasing the child’s chances at good health. The many ethical issues inherent to such tests and the genetic nature of mutations in autosomal recessive diseases continue to pose challenges to specialists attempting to interpret the results of the screening, with similar challenges facing the pharmaceutical industry as it works to develop high-tech drugs for the treatment of rare and orphan diseases. This session seeks to promote dialogue in the expert community on the relationship between expanded preconception and prenatal screening and the potential for reducing the frequency of congenital disorders in the country.

Moderator:

Member of the Presidium, Russian Association for the Promotion of Science

Panellists:

Director, Scientific and Educational Center for Law and Bioethics in the Field of Genomic Research and Application of Genetic Technologies, Kutafin Moscow State Law University (MSAL)

Director, D.O. Otta Scientific Research Institute of Obstetrics, Gynecology and Reproductology

Vice President for the Introduction of New Medical Technologies, Generium

Deputy Chief of the Presidential Directorate for Science and Education Policy

Director, Institute of Reproductive Genetics, Academician V.I. Kulakov National Medical Research Center for Obstetrics, Gynecology and Perinatology of the Ministry of Health of the Russian Federation

Rector, Yaroslavl State Medical University of the Ministry of Health of the Russian Federation

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